Christine Clarkin, PT, DPT, PhD
Awards
Advance-CTR Pilot Projects Program (Cycle 6)
" EMPOWER-PD"
The primary aim of this pilot study (EMPOWER PD) is to assess the feasibility and accessibility of an interdisciplinary, patient-centric model of health care delivery in a “boot camp” style structured clinic for people with Parkinson’s disease (PwPD). The overall goal of the EMPOWER PD clinic is to promote health and wellness among Rhode Islanders diagnosed and living with Parkinson’s disease. The EMPOWER PD clinic will support ongoing rehabilitation to maximize independent living for people with Parkinson’s disease (PwPD) and improve access to comprehensive, integrated, and personalized healthcare in underserved areas and populations across Rhode Island.
Aim #1: Clinic Development: Assess community capacity to develop, implement, and sustain an interdisciplinary patient-centric clinic. Aim #2: Clinic Implementation (trial) to determine the potential reach (i.e., proportion of target population & representativeness), adoption (i.e., the degree to which the intervention can be adopted, implemented, and sustained as intended) and implementation (i.e., resource and staffing costs) of the newly developed clinic intervention. Aim #3: Evaluate inclusion and health equity of EMPOWER PD participants
Study Design: This is a pilot study assessing the feasibility and accessibility of an interdisciplinary, patient-centric model of health care delivery, the EMPOWER PD clinic. This pilot study will utilize the RE-AIM (reach, effectiveness, adoption, implementation, maintenance) framework to guide the development, implementation, and measurement of the EMPOWER PD program. After community engagement through focus groups and interviews to guide clinic development, twenty PwPD (and their caregivers) in the South County and Providence areas will be enrolled to attend a three session EMPOWER PD clinic and a two month follow up interview. Repeat assessments of self-reported outcome measures (SROs) will be conducted at intake (Pre Assess) and 2 months after clinic completion (Post Assess). Tracking of attendance, adverse events, and participant characteristics will be conducted.